Millie Longhenry was diagnosed with a severe congenital brain malformation called alobar holoprosencephaly (HPE) at 2 months old. Moving Mountains for Millie “They told us over 95% of patients w ...

they were told she had no hope of survival due to a rare and severe congenital brain disorder called alobar holoprosencephaly (HPE). HPE affects about one in 10,000 live births, and most infants ...