Gio passed away at the age of 5, but his family and medical team remember the joy he brought into their lives.

In 2015, NICE said that BioMarin's Vimizim could be used to treat patients with the ultra-rare disease Morquio A syndrome, while real-world data was collected on its efficacy. Now – almost seven ...

Gio, as he was known, was diagnosed with Morquio Syndrome, a rare and progressive birth defect that impacts the body's ability to function over time. Donnelly only worked with him for six months ...

A singer-songwriter who has one of the rarest conditions in the world has joined forces with the police to launch an access card for disabled people. Gracie Mellalieu, 18, is one of just 3,000 people ...

This tells the story of a strong friendship between a young boy with Morquio's syndrome and an older boy who is always bullied because of his size. Adapted from the novel, Freak the Mighty, the ...