Introduction The National Audit of Care at the End of Life reports the quality of care provided to people dying in hospital. This paper reports the bereavement (quality) survey data about the families ...

The multidisciplinary care of people with motor neuron disease (MND), also known as amyotrophic lateral sclerosis (ALS), is now widely established and recommended in several guidelines.1 2 However, ...

Background Three trajectories of physical decline have been identified towards the end of life: (i) a short period of evident decline typically experienced by patients with cancer; (ii) long term ...

Background Research has found that caring affects carers physically, mentally, and emotionally (Davidson & Gentry, 2013; Carers UK, 2020), with many carers reporting getting no breaks at all (Carers ...

Objectives Assisted dying has been legally available in Oregon in the USA for 25 years, since when official reports have been published each year detailing the number of people who have used this ...

Background Within England, increasing numbers of frail patients are receiving support from community-based specialist palliative care services (Polak, Hopkins, Barclay, et al. Br J Gen Pract. 70(699), ...

Introduction Patients with ventilator-dependent motor neuron disease (MND) may request withdrawal of their assisted ventilation. Facilitating this process as a healthcare professional (HCP) can be ...

Objectives To assess the availability and efficacy of interventions open to adolescents and young adults (AYAs; 15-25 years) bereaved by a parent’s or sibling’s cancer. Methods A systematic review of ...

Background The End of Life Care Strategy for England has highlighted the delivery of high quality palliative care in the acute hospital setting as an area of priority, acknowledging that a proportion ...

Background Delirium is a debilitating disorder with high prevalence near the end of life, impacting quality of life of patients and their relatives. Timely recognition of delirium can lead to ...

Routine data (ie, data collected for clinical or administrative purposes) have long been used to describe and quantify end-of-life experiences, including inequitable outcomes. For example, studies ...